Inspiring Change in Haemophilia: video series

Photo montage of different haemophilia patients

Welcome to Inspiring Change in Haemophilia, where we hear the patient perspective of living a healthier life with haemophilia. We’re focusing on raising awareness of bleeding disorders including reducing limitations, ensuring healthy joints and staying positive. Our video series features a variety of inspirational people from the haemophilia community who are all making a difference.

Inspiring Change in Haemophilia
Heinz?

Heinz tells his story of living his life with haemophilia and sharing insights of the changes in the haemophilia care and awareness in the last 60 years.

Inspiring Change in Haemophilia
Harry and Olivia

Diagnosed very early in his life, Harry and his mother Olivia share their experience from a patient perspective as well as from a carer perspective.?

Inspiring Change in Haemophilia
Jecorei

Meet Jecorei – an inspirational choreographer, dancer and person with haemophilia from the US. He talks about how exercise helped him with his bleeding disorder and shares a great dance routine.
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Inspiring Change in Haemophilia
Brigitte

Brigitte is a nutritionist who specialises in haemophilia. In this film she’ll run through why nutrition is important with patient Jonah. They’ll also cook a recipe together while Jonah talks about how improved nutrition benefited him.

Inspiring Change in Haemophilia
Chris

Chris is a mountain climber, outdoors enthusiast and passionate haemophilia advocate. Hear him talk about how following his dreams also helped him to make positive changes with his haemophilia care.

Rare bleeding disorders

We also created films to raise awareness of rare bleeding disorders, acquired haemophilia and Factor XIII deficiency, which both affect the way that blood clots. You can find out more from Linda and Brian’s videos below.?

Raising awareness of Acquired Haemophilia Linda

Linda tells her story of being diagnosed with acquired haemophilia, a rare bleeding disorder, and how developing an inhibitor changed her life.

Raising awareness of Factor XIII Deficiency Brian

Born with rare bleeding disorder Factor XIII deficiency, Brian shares his story of where he finds support for his condition.

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